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References: Patient education

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Are you sure you want to delete this section?References: Patient education : Section 5336
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1.  Pepper-Burke N. Chronic disease self-management workshop: an implementation model from Southern California. HPP. 2003;4(1):8-13.


2.  World Health Organization.  Innovative care for chronic conditions: building blocks for action: global report, Health Care for Chronic Conditions Team. Geneva: World Health Organization; 2009.


3.  Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. JAMA. 2002;288(19):2469-2475.


4.  Glasgow RE, Boles SM, McKay HG, Feil EG, Barrera MJr. The D-Net diabetes self-management program: long-term implementation, outcomes, and generalization results.  AJPM.  2003;36(4): 410 419.


5.  Adams K, Greiner AC, Corrigan JM, editors.  Report of a summit. The 1st annual crossing the quality chasm summit – a focus on communities.  Washington, DC: National Academies Press; 2004.


6.  Flinders Human Behaviour and Health Research Unit. Capabilities for supporting prevention and chronic condition self-management: a resource for educators of primary health care professionals [document on the Internet]. Adelaide, Australia: Flinders University; 2006 [cited 2010 Feb 6]. Available from: http://som.flinders.edu.au/FUSA/CCTU/


7.  Wagner EH, Austin B, Von Korff M.  Organizing care for patients with chronic illness. Milbank Q. 1996;74(4):511-44.


8.  Barr VJ, Robinson S, Marin-Link B, Underhill L, Dotts A, Ravendale D, Salivara S. The expanded chronic care model:  an integration of concepts and strategies from population health promotion and the chronic care model.  Hosp Q. 2003;7(1):73-82.


9.  Gibson PG, Powell H, Wilson A, Abramson MJ, Haywood P, Bauman A, et al. Self-management education and regular practitioner review for adults with asthma. Cochrane Database Syst Rev [document on the internet]. 2002 [cited 2010 Feb 5]. Available from http://www.cochrane.org/reviews/en/ab001117.html


10.   Norris SL, Lau J, Smith SJ, Schmid CH, Engelgau MM. Self-management education for adults with type 2 diabetes: a meta-analysis of the effect on glycemic control. Diabetes Care. 2002;25(7):1159-1171.


11.  Newman S, Steed, L, Mulligan K. Self-management interventions for chronic illness.  The Lancet. 2004;364(9444):1523-1537.


12.  Krichbaum K, Aarestad V, Buethe M. Exploring the connection between self-efficacy and effective diabetes self-management. Diabetes Educ. 2003;29(4):653-62.


13. World Health Organization. Report of a WHO Working Group. Therapeutic Patient Education. Continuing education programmes for healthcare providers in the field of prevention of chronic diseases. Copenhagen: World Health Organizacion; 1998.


14. Gagnayre R. Education thérapeutique du patient. In: Bourdillon F, Brücker G, Tabuteau D eds. Traité de Santé Publique, 2ème édition. Paris: Flammarion Médecine-Sciences, 2007; 216–21.


15 .  Ellis SE, Speroff, T, Dittus RS, Brown A, Pichert JW, Elasy TA. Diabetes patient education: a meta-analysis and meta-regression. 2004. Patient Educ Couns. 2004;52(1):97-105.


16.  Lorig KR, Ritter P, Stewart AL, Sobel DS, Brown BW Jr, Bandura A, et al. Chronic disease self-management program: 2 –year health status and health care utilization outcomes. Med Care. 2001;39(11): 1217-1223


17.  Anderson RM, Funnell MM. Patient empowerment: Reflections on the challenge of fostering the adoption of a new paradigm. Patient Educ Counsel. 2005;57(2):153-157.


18.  Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: A review. Patient Educ Counsel. 2002;48(2):177-187.


19.  Goldstein M, Whitlock E, DePue J. Multiple behavioral risk factor interventions in primary care. AJPM. 2004;27(2S):61-79.


20.  Ockene JK, Ockene IS, Quirk ME, Hebert JR, Saperia GM, Luippold, RS, et al. Physician training for patient-centred nutrition counselling in a lipid intervention trial. Prev Med. 1995;24(6):563-570.


21.  Goldstein MG, DePue J, Kazura A. Models for provider-patient interaction: applications to health behavior change. In: Shumaker SA, Schon EB, editors. The Handbook of Health Behavior Change. 2nd ed. New York: Springer; 1998. p. 85-113.


22.  Pinto BM, Lynn H, Marcus BH, DePue J, Goldstein MG. Physician-based activity counseling: intervention effects on mediators of motivational readiness for physical activity. Ann Behav Med. 2001; 23(1):2-10.


23.  Glasgow RE, Toobert, DJ, Barrera, M Jr, Strycker, LA. Assessment of problem-solving: A key to successful diabetes self-management.  J Behav Med. 2004; 27(5):477-490. 


24.  Registered Nurses Association of Ontario (RNAO) [homepage on the internet]. Toronto: RNAO; 2010 [cited 2010 Feb 2]. Available from: http://www.rnao.org.


25. Cincinnati Children’s Hospital Medical Center Chronic Care: Self-Management Guideline Team. Evidence-based care guideline for chronic care: self-management [document on the Internet].  Cincinnati: Cincinnati Children’s Hospital Medical Center; 2007 [cited 2010 Feb 5]. Available from: http://www.guidelines.gov/summary/pdf.as....


26.  Miller WR, Rollnick S. Motivational interviewing: Preparing people for change. 2nd ed. New York: Guilford Press; 2002.


27.  The Motivational Interviewing Page [homepage on the Internet] Kansas City: Mid Atlantic ATTC; 2009 [cited Feb. 4]. Available from: http://www.motivationalinterviewing.org.


28.  Miller WR, Rollnick S. Ten things that motivational interviewing is not. Behavioural & Cognitive Psychotherapy. 2009;37(2):129-140.


29.  Rubak S, Sandbaek A, Lauritzen T, Christensen B. Motivational interviewing: a systematic  review and meta-analysis. Br J Gen Pract. 2005;55(513):305-312.


30.  Lewin SA, Skea ZC, Entwistle V, Zwarenstein M, Dick J. Interventions for providers to  promote patient-centred approach in clinical consultations. Cochrane Database Sys Rev.   2001;(4):CD003267.


31.  Hettema J, Steele J, Miller WR. Motivational interviewing. Rev Clin Psychol. 2005;1:91-111.


32.  Britt E, Hudson M, Blampied NM. Motivational interviewing in health settings: a review. Patient Educ Couns. 2004;53(2):147-55.


33.  Burke BL, Arkowitz H, Menchola M. The efficacy of motivational interviewing: a meta-analysis of  controlled clinical trials.  J Consult Clin Psychol. 2003;71(5):843-61.


34.  Bodenheimer T, Grumbach K. Improving primary care: Strategies and tools for a better practice. New York: McGraw Hill; 2007. 


35.  Flinders Human Behaviour and Health Research Unit . The Flinders Model of chronic condition self-management [document on the Internet]. Adelaide, Australia: Flinders University School of Medicine; 2009 [cited 2010 Feb 5]. Available from: http://som.flinders.edu.au/FUSA/CCTU/Self-Management.htm .


36.  Battersby M, Ask A, Reece M, Markwick M, Collins J. The partners in health scale: the development and psychometric properties of a generic assessment scale for chronic condition self-management.  Aust J PH. 2003;9(3):41-52.


37.  Battersby MW, SA HealthPlus Team. Health reform through coordinated care: SA health plus.  BMJ. 2005;330(7492):662-5.


38.  Battersby MW, Ah Kit J, Prideaux C, Harvey, PW, Collins, JP, Mills PD. Implementing the Flinders  Model of self-management support with Aboriginal people who have diabetes: findings from a pilot study. Aust J Prim Health. 2008;14(1):66-74.  


39.  Lawn S, Battersby M, Pols RG, Lawrence J, Parry T, Urukalo M. The mental health expert patient: findings from a pilot study of a generic chronic condition self-management programme for people with mental illness.  Int J Soc Psychiatry. 2007;53(1): 63-74.


40.  Rowett D, Simmons S, Cafarella P, Frith P. Informed partnerships for effective self-management of chronic and complex lung diseases. The Flinders Model of chronic condition self-management [document on the Internet]. Adelaide, Australia: Flinders University School of Medicine; 2005 [cited 2010 Feb 5]. Available from http://som.flinders.edu.au/FUSA/CCTU/


41.  Lorig K, Lubeck D, Kraines RG, Seleznick M, Holman HR. Outcomes of self-help education for patients with arthritis. Arthritis Rheum 1985;28(6):680-685


42.  Lorig K, Sobel DS, Stewart AL, Brown BW, Bandura A, Ritter P, et al. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial. Med Care. 1999;37(1):5-14


43.  Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002;48(2):177-87.


44.  Vázqueza I, Romero-Fraisa E, Blanco-Apariciob M, Seoanec G, Oterob I et al. Psychological and self-management factors in near-fatal asthma. J Psych Res. 2010;68(2):175-181.


45.  Espinoza-Palma, T., Zamorano, A., Arancibia, F., Bustos, M., Silva, M., Cardenas, C., et al.  Effectiveness of Asthma education with and without a self-management plan in hospitalized  children. Journal of Asthma. 2009;46(9):906-910.


46.  Guevara JP, Wolf, FM, Grum, CM, Clark NM. Effects of educational interventions for self-management of  asthma in children and adolescents: Systematic review and meta-analysis. BMJ. 2003; 326(7402):1308-1309.


47.  Van Weert E, Hoekstra-Weeber  J, M May A, Korstjens I, Ros W, Van der Schans C. The development  of an evidence-based physical self-management rehabilitation programme for cancer survivors.  Patient Educ Couns. 2008;71(2):169–190.


48.  Bourbeau J, Nault D, Dang-Tan T. Self-management and behaviour modification in COPD. Patient  Patient Educ Counsel.  2004; 52(3):271-277.


49.  Gifford AL, Groessl EJ.  Chronic disease self-management and adherence to HIV medications.    JAIDS. 2002;31(53):S163-S166.


50.  Carrard I, Rouget P, Fernandez-Aranda F, Volkart A, Damoiseau M, Lam T. Evaluation and deployment of evidence based patient self-management support program for bulimia nervosa. IJ  Med Inf. 2006;75(1):101-109.


51.  Thomas-Hawkins, C, Zazworksky D. Self-management of chronic kidney disease. AJN. 2005;105(10): 40-8.


52.  Baker DW, Asch SM, Keesey JW, Brown JA, Chan KS, Joyce G, et al. Differences in education, knowledge, self-management activities, and health outcomes for patients with heart failure cared for under the chronic disease model: the improving chronic illness care evaluation. J Card Fail. 2005;11(6):405-413.


53.  Mountain G. Self-management for people with early dementia: An exploration of concepts and  supporting evidence. Dementia. 2006;5(3): 429-446.


54.  Rees G, Saw CL, Lamoureux EL, Keeffe JE. (2007).Self-management programs for adults with low vision: needs and challenges. Patient Educ Counsel. 2007; 69(1-3): 39-46. 


55.  Brody BL, Roch-Levecq AC, Thomas RG, Kaplan RM, Brown, SI. Self-management of age-related  macular degeneration at the 6 month follow up: a randomized controlled trial.  Arch Ophthalmology.   2005;123(1):46-53.


56.  Bachman J, Swenson S, Reardon ME, Miller D. Patient self-management in the primary care treatment of depression.  Adm Policy Ment Health. 2006;33(1):76-85.


57.  Jones F. Strategies to enhance chronic disease self-management: How can we apply this to stroke?   Cont Ther Stroke Rehab. 2006;28(13-14):841-847.


58.  Phelan EA, Williams B, Leveille S, Snyder S, Wagner EH, LoGerfo JP. Outcomes of a community-based dissemination of the health enhancement program. J Am Geriatr Soc. 2002;50(9):1519-24.


59.  Ackermann RT, Cheadle A, Sandhu N, Madsen L, Wagner EH, LoGerfo JP. Community exercise program use and changes in healthcare costs for older adults.  Am J Prev Med. 2003;25(3);232-7.


60.  Castro CM, King AC. Telephone-assisted counselling for physical activity. Exercise and Sport Sciences Reviews. 2002; 30(2):64-8.


61.  Wilcox S, Dowda M, Griffin SF, Rheaume C, Ory MG, Leviton L, et al. Results of the first year of Active for Life: translation of two evidence-based physical activity programs for older adults into community settings. Am J Public Health. 2006;96(7):1201-9.


62.  Tennsdedt S, Howland J, Lachman M, Peterson E, Kasten L, Jette A. A randomized controlled trial of a group intervention to reduce fear of falling and associated activity restriction in older adults. J Gerontol. 1998;54(6):384-92.


63.  Ciechanowski P, Wagner EH, Schmaling KB, Schwartz S, Williams B, Diehr P, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA. 2004;291(13):1569-77.


65.  Etkin CD, Prohaska TR, Harris BA, Latham N, Jette A. Feasibility of implementing the Strong for Life program in community settings. Gerontologist. 2006;46(2):284-92.


66.  McGowan P, Lorig K.  The delivery of self-management interventions. In Newman S,  Steed L. Mulligan K. Eds. Chronic physical illness: self-management and behavioural interventions.  Berkshire England: Open University Press, McGraw Hill; 2008


67.  Lorig K, Holman HR. Self-management education: history, definition, outcomes, and mechanisms. Ann  Behav Med 2003;26(1):1-7.


68.  Bandura A. Social functions of Thought and Action: A Social Cognitive Theory. Englewood Cliffs, NJ: Prentice Hall;1986.


69.  Bandura A. Self-efficacy: the exercise of control. New York: Freeman; 1997.


70.  Glasgow RE, Vogt T, Boles SM. Evaluating the public health impact of health promotion  interventions: the RE-AIM framework. Am J Public Health. 1999;89(9):1322-7.


71.  Rogers EM. Diffusion of innovations. 5th ed. New York: Free Press; 2003.


72.  Green LW, Kreuter MW. Health promotion planning: an educational and ecological approach. New  York: Mayfield Publishing Co;2005.


73.  Gifford AL, Laurent DD, Gonzales VM, Chesney MA, Lorig K. Pilot randomized trial of education to improve self-management skills of men with symptomatic HIV/AIDS. J Acquir Immune Defic Syndr Hum Retrovirol.1998; 18(2):136-144.


74.  Sobel DS, Lorig KR, Hobbs M. Chronic Disease Self-Management Program: from Development to Dissemination. Permanente Journal [serial on the Internet]. 2002 [cited 2010 Feb 2]; 6(2):Spring. 2002;6(2). Available from: http://xnet.kp.org/permanentejournal/spring02/selfmanage.html


75.  Swerissen H, Belfrage J, Weeks A. A randomized control trial of a self-management  program for people with a chronic illness from Vietnamese, Chinese, Italian and Greek backgrounds.   Pt Educ Couns. 2006;64(1-3):360-8.


76.  McGowan P, Green LW. Arthritis self-management in native populations of BC: an application of health promotion and participatory research principles in chronic disease control. Can J Aging. 1995;14(1):201-212.


77.  Dongbo F, Hua F, McGowan P, Yi-E S, Lizhen Z, Huiqin Y, et al. Implementation and quantitative evaluation of chronic disease self-management programme in Shanghai, China: Randomized controlled trial. Bull World Health Organ. 2003;81(3):174-182.

78.  Griffiths C, Motlib J, Azab A, Ramsay J, Eldridge S, Feder G, et al. Randomized control trial of a lay-led  self-management programme for Bangladeshi patients with chronic disease. Br J Gen Pract. 2005; 55(520):831-837.


79.  Dongbo F, Ding Y, McGowan P, Hua F. Qualitative evaluation of chronic disease self-management program  (CDSMP) in Shanghai. Patient Educ Couns.  2006; 61(3):389-96.


80.  Nolte S, Elsworth GR, Sinclair AJ, Osborne RH. The extent and breadth of benefits from participating in chronic disease self-management courses: A patient-reported outcome survey. Patient Educ Couns. 2007;65(3):351-60.


81. Toft U, Kristoffersen L, Aadahl M, et al. Diet and exercise intervention in a general population-mediators of participation and adherence: the Inter99 study. European Journal of Public Health.2006;17(5):455-463.


82. Effectiveness of diabetes self-management education intervention Elements: A meta-analysis. Canadian Journal of Diabetes. 2009;33(1):18-26.


83.  Agency for Healthcare Research and Quality. Patient Self-Management Support Programs: An Evaluation [document on the internet]. Rockville, MD; 2007. [cited 2010 Feb 2]. Available from: http://www.ahrq.gov/qual/ptmgmt/.


84.  Bodenheimer T, Handley MA. Goal-setting for behavior change in primary care: an exploration and status report. Patient Educ Couns. 2009;76(2): 174-80.


85.  Gibson PG, Powell H, Coughlan J, Wilson AJ, Hensley MJ, Abramson M, et al. Limited (information only) patient education programs for adults with asthma. Cochrane Database Syst Rev [document on the internet]  2002 [cited 2010 Feb 5]. Available from: http://www.cochrane.org/reviews/en/ab001005.html


86.  Toelle B, Ram FSF. Written individualised management plans for asthma in children and adults. Cochrane Database Syst Rev [document on the Internet]. 2004 [cited 2010 Feb 5]. Available from: http://www.cochrane.org/reviews/en/ab002171.html


87.  Deakin TA, McShane CE, Cade JE, Williams R. Group based training for self-management strategies in people with type 2 diabetes mellitus. Cochrane Database Syst Rev [document on the Internet]. 2005 [cited 2010 Feb 5]. Available from: http://www.cochrane.org/reviews/en/ab003417.html


88. Funnell MM, Anderson RM. Patient Empowerment:  A Look Back,  Look Ahead. Diabetes Educ. 2003;29(3):454-8.


89. Simmons L, Baker NJ, Schaefer J, Miller D, Anders S. Activation of patients for successful self-management. J Ambul Care Manage. 2009 Jan-Mar;32(1):16-23


90. Hibbard JH, Stockard J, Mahoney ER, Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res. 2004 Aug;39(4 Pt 1):1005-26.


91.  Murphy L, Theis K, Brady T, Hootman J, Helmick C, Bolen J, et al.  A health care provider’s  recommendation is the most influential factor in taking an arthritis self-management course: a  national perspective from the arthritis conditions and health effects survey.  Arthritis and  Rheumatism. 2009;56(9)S307-S308.


92. Shachak A, Jadad AR. Electronic Health Records in the Age of Social Networks and Global Telecommunications. JAMA. 2010;303(5):452-453). We are now entering a fascinating era, which could be called Self-Management 2.0, defined as "self-management based on social support through new technologies" (http://ww.globalalliancesms.org).


93.  Ybarra ML, Suman M. Help seeking behavior and the Internet: a national survey. International  IJ Med Inf. 2006;75(1):29-41.


94.  Ferguson T, Frydman G. The first generation of e-patients. BMJ. 2004;328(7449):1148-1149.



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